Hi
PAUL CNG Welcome to J2ski. Your condition sounds painful

full credit to you for keeping going with your skiing. As a total amateur it seems to me that your boots need to be set up to mimic a forward lean position, whilst still leaving you upright. Hopefully
CEM will be along soon to give an expert's view on the bootfitting stuff. I'll leave the skiing stuff to other J2skier's to contemplate.
What led to you getting your diagnosis?